As I discussed in my last post, we seem to have one thing, after another, after another hit our family. Yet still we persevere. For the last little while, so like, the last ten months, Jackson has decided to quit sleeping. He wouldn't sleep at all. We would put him to bed, and he would… Continue reading Tonsils!
If you have kept up with Hailey's journey, then you may recall that Hailey was diagnosed with CVI, or Cortical Vision impairment. We have been doing vision therapy at home, and meeting with a specialist once a month. We were finally able to get into a doctor about half an hour away from where we… Continue reading Sink or Swim
We took Hailey to Utah to visit her neurologist, and to have an assessment and evaluation done. It ended it being much more stressful than we anticipated, but also very informative. For starters, Hailey was evaluated at one of the clinics there. She has to go in every so often and they check her development.… Continue reading Hailey’s New Diagnosis
I thought I would write about some of the fun family adventures we have been on. After spending time at Primary Children's, Hailey and I came home and were able to hang out for three days, then it was back to Utah! This time we went to Logan to hang out with my sister and… Continue reading Fun with the Little Ones!
*UPDATE 9/7/18* we got the okay to call the surgeon and get Hailey's G tube!!! No more waiting! She is pulling her NG out frequently enough that we just got sick of it and basically demanded a G tube...in a nice way of course . This last week was so insane I feel like it… Continue reading The Waiting Game
When Hailey came home, she had to come home on both oxygen and an NG tube. Initially she came home only needing the feeding tube at night. However things quickly changed, and in the six weeks that we have had Hailey home, she has quit taking bottles. She will occasionally take one, but for the… Continue reading Tube Baby!
This last week and a half has been filled with both positives and negatives! Let's start with miss Hailey! Hailey is doing well. She He finally hit two pounds and currently weighs 2 lb 9oz. she is steadily gaining weight, and is continuing to do well! Her personality is continuing to show through a little… Continue reading Bows, Growing, and Baby Yoga