For those of you who have been keeping up with Hailey, and everything going on with her, You will know that in January she was diagnosed with cerebral palsy. When we got that diagnosis we weren't very surprised. In fact, we expected it. It was still a painful blow nonetheless. It was something painful, but… Continue reading Spastic Quadriplegic Cerebral Palsy
If you have kept up with Hailey's journey, then you may recall that Hailey was diagnosed with CVI, or Cortical Vision impairment. We have been doing vision therapy at home, and meeting with a specialist once a month. We were finally able to get into a doctor about half an hour away from where we… Continue reading Sink or Swim
We took Hailey to Utah to visit her neurologist, and to have an assessment and evaluation done. It ended it being much more stressful than we anticipated, but also very informative. For starters, Hailey was evaluated at one of the clinics there. She has to go in every so often and they check her development.… Continue reading Hailey’s New Diagnosis
Since Hailey was in the NICU, while there were days I was feeling sorry for myself, there were also days where I was truly feeling sorry for the other mammas there. After going through the kind of pain that I did, I decided I wanted to do something for them! I went to our Relief… Continue reading NICU Kits
We were finally able to bless our sweet Hailey!! In our church it is important to Bless a child, and give them a name and a blessing. We decided it would be best to get that done before the Holiday season came. Here are few fun pictures!! (Special thanks to Grandma Jean and Grandpa Bill… Continue reading Blessing Day!
I have really struggled the past couple of days to find the words to put in this post. Every time I start to write, I just start bawling, granted I have been doing a lot of that the last couple of days. So rather than diving right in to our doctors appointment we had on… Continue reading Hailey’s Latest Update
We had a great, emotional, exhausting couple of days! For starters, Hailey was scheduled to have surgery on the 11th to have a brand new G-tube placed. The days before, as we were getting ready I noticed that my hip was still hurting really bad. So we went back to my doctor who gave me… Continue reading G-tube Surgery!!!